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Resource Hub

Bringing together downloadable tools and guides to help you find a good balance between managing your beta thalassaemia and living life your way.

These resources are a great place to start exploring ways of achieving a balance between managing your beta thalassaemia and living a normal life. Keep talking with your healthcare team for more ideas and check out our Community page to find ways to join others in the beta thalassaemia community. There is lots of support available to you to help you find your path.

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        Aisha living with beta thalassaemia talking to Naziha
        Getting the most out of your medical appointments
        You can own the conversation with your healthcare team – see how with this guide
        Aisha taking notes while having coffee
        Setting goals that work for you
        Goal setting is a simple, but powerful, technique that can help you focus on what’s most important to you – use this tool to plan your own goals
        Kostas living with beta thalassaemia major having a conversation with Gaia
        Your Wellness Journal
        Keep track of your beta thalassaemia with your own wellness journal
        doctor talking to a patient
        Living with beta thalassaemia: top tips for self-management
        Keep taking an active role in your health and wellbeing, with these top tips to help you manage your beta thalassaemia

        Find your path